Movement

Hello, so here's an update:

I'll start with the weekend; it was not great. Man's movement was slow and painful. As a result, his mood was low having felt restricted for so long now. It's all very well sitting around and watching telly if that's your choice but now he's had that choice taken from him, it's very boring. And depressing. And of course there's no biking to watch anymore.  He said many times over the weekend that he'd like to just be able to take the dog for a walk. And there were many times when he didn't say a word (which is not like him) but suffered in silence.

Pain is a constant reminder of the infestation within his body and therefore it's easy to let it take over his mind. I made the misjudgement of asking our lovely friends to borrow a walking aid to help Man get about the house. He politely declined it - it didn't get further than the front door - and they kindly took it back to their house.  I felt awful, I felt I'd pushed something on him that he clearly wasn't ready for.  Most of all, I didn't want to put the idea into his head that I viewed him as disabled. I mean he clearly is (!) but obviously his pride and will is nowhere near ready and that's fine. And so, pathetic fallacy style-y, we sat indoors on Sunday, hardly moved and watched the rain relentlessly fall outside.

BUT, by yesterday the mood - his and mine - had lifted. The sun was shining and it was our final trip to Chaucer for Round 3. Man made no bones (pun intended) about the pain he'd been in and the nurses listened warmly and prescribed Gabapentin for his nerve pain.  The usual bloods were taken,  Velcade injected into his belly and Dex was administered.  Whilst waiting to see oncologist Dr L, we were told that his paraprotein levels have gone down yet again! In 3 months they've gone from 58 to just 8 so these chemicals are indeed working, hurrah! But of course, Man's primary concern now is the damage in his pelvis and we were assured that an appointment will be made sooner rather than later to see the bone guy, Mr M, in London.  Hopefully a scan date will be offered very soon.

In the meantime, full of dex (steroid) and the new and wonderful Gabapentin physical improvement was visual to me and felt keenly by Man. In fact, the bloke literally sprung out of bed this morning and did a little naked dance for me, a la Strictly Come Dancing style 😄  Believe it or not, it was the most welcome sight seeing my hubster prance off to get the morning coffee...

Movement breeds freedom and freedom soothes the mind. After a pretty shitty week, all is much better in the world and we're back to flying the #teambradley flag. We've got a nice weekend to look forward to, we've got sun on our faces and meds doing their job.

Oh and the other big news is that Man is currently writing a blog entry - watch this space!

Big love xx

PS - Bone scan appointment just in - 11th October :-)